FRIO INSULIN COOLER GIVEAWAY WITH DWED MEMBERSHIP!

Frio are a company that produce insulin coolers that are recommended by hospitals and diabetic clinics worldwide. They offer a wide range of choices in shape and design to suit individual needs and preferences, from large coloured wraps and wallets to smaller pouches. They take away the need for refrigeration or ice packs when carrying insulin pens and vials for pump technology on route. They are ideal for journeys on hot summer days, in the car or packed in luggage cases, but are also recommended for daily use if required such as student halls or stays in hostel accommodation. Diabetes should never hold us back!

I tried out one of the small duo Frio’s which are able to hold either two pens or two vials of insulin. The larger wallets have room for 5 pens of 10 vials so have plenty of space for all the medication supplies you need. I use an insulin pump so a smaller pouch was ideal for me to be able to carry one spare pen and a vial of Novorapid in my bag, just for those sometimes unavoidable emergencies where you need extra insulin to hand. The Frio I chose has a decorative daisy design which suited me well, too, and it’s these individual touches that make the entire range appealing.

The Frio definitely does what it promises, and my insulin was kept completely cool. The science behind it basically involves a reusable evaporative cooler insert which activates with water.

For July DWED have 4 free Frio’s to giveaway which were kindly donated by the company themselves. Two are plain kip wallets in pink and bright green, and another is of a similar large size but is monochrome and wrapped with a pretty polka dotted bow. The fourth is a smaller one like mine but has a black and white skull and crossbow design. Please see the photos below!

This month everybody that signs up for a new membership package for just £3 a month and opts in will be entered into a prize draw to win one of the four coolers.  If you want to be part of the competition just fill in the form below and we will verify your subscription against your given email address.

Membership also as always will provide access to regularly updated premium content that is available nowhere else.  Please see more details here and after completing the payment process register for your unique log in via the user area at the top right hand of our homepage.

Good luck to everyone that enters! We will reveal winners on the last of the month via our social media pages.

For more information on all Frio products please refer to their website

Choice

Backtracking slightly, this is my blog for Diabetes Blog Week Day 2, for which the focus was: The Cost of a Chronic Illness - Tuesday 5/16
"Insulin and other diabetes medications and supplies can be costly.  Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage.  So today, let’s discuss how cost impacts our diabetes care.  Do you have advice to share?  For those outside the US, is cost a concern?  Are there other factors such as accessibility or education that cause barriers to your diabetes care?"

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There's been quite a bit of media coverage and discussion on the dire state of medical care of those with chronic health conditions in the USA just lately. I’ve read a number of reports relating to people with diabetes having to resort to skimping on insulin doses due to the expense and even buying knocked-down, knock-off supplies through the black market.  As a citizen of the UK with access to the NHS I cannot imagine the hardship of such a situation and find it difficult to fully comprehend. I won’t try to do that because I feel the only people truly at liberty to comment on it are those in the thick of it. All I can say is that I feel very much for them. It isn’t right and it isn’t fair. I very much hope that the situation will change.

Even further away, people with type-1-diabetes in third world countries don’t even have the resources they need to survive. Some won’t even get a diagnosis and will die painfully without any access to insulin whatsoever. T1International is an amazingly worthwhile charity that endeavours to help those people where they can.  It hurts my heart to consider the struggle of those individuals. I know what untreated diabetic ketoacidosis feels like and I wouldn’t wish it on my worst enemy.

With respect to all of this, I am hugely thankful for the NHS, I must stress that. Most of all, that lifeline we have to be able to access our prescriptions without any cost at all is huge. A vial of blood test strips can cost upwards of £25 and with my erratic blood glucose levels, I can go through them quickly. That’s not to mention the cost of insulin itself, of pump supplies and equipment.  Then there’s the option to be able to walk into hospital and be seen if we need to be, without an itemised bill arriving afterwards which lists every blood sugar reading taken, every nurse check and glucose urine dipping test. Yes we may sometimes have to wait, and yes sometimes we can be pushed aside when we need priority, but elsewhere there is simply no option of being able to walk in and that receive medical attention without a price.

The above is a disclaimer of sorts before I continue, to state that I am so they say ‘checking my privilege’. That said, I feel that what I have to say still deserves serious acknowledgement. I must speak of what I know.

An area where the NHS needs significant improvement concerns allocation of funds for the treatment of people with type-1- diabetes and a mental health condition, most significantly eating disorders. There is a fundamental flaw to be found in this area which means money is being wasted, flushed down the drain, often alongside a desperate cover-up of bleach, the stench of which is strong and lasting.

“In the NHS, when it comes to treatment for mental illness, you do not have any choice.”

This is what I was told by a psychiatrist that was overseeing my care as an outpatient at my local eating disorder service. I was on the verge of being sectioned if I did not submit to an inpatient hospitalisation. In agreement to this, I had found a facility that was trained in eating disorders and type-1-diabetes and would be willing to admit me with the appropriate referral, and had an advocate that helped me to stress the importance of this. However, this was not their go to route and so my view was dismissed. Instead, I was sent to the allocated unit that every patient was unduly sent to, the cheapest option.

The first day I arrived at that unit they did not have any needles on the ward to give me my insulin. They had not been trained and some of the staff were surprised to find out I was diabetic. 6 months down the line I was at the centre of a complaint concerning negligence and had been safeguarded by a whistleblower as a vulnerable adult. I had lost hope of recovery and felt traumatised by the entire experience. Now three years later, I still have nightmares about some of the situations I was put in.

On the flip side, while some of the health workers on that unit were downright ignorant and dismissive of my additional needs, others, mainly a handful of the nurses, were undoubtedly fantastic at their jobs. While overstretched and under-resourced, they did all they could, but they were just not clued up on type-1-diabetes and they should never have been put in a position whereby they had to try and cope without full expertise.

I am not the only one with a story like this to tell, far from. Those with diabulimia are routinely being ‘treated’ as those with more typical eating disorders.  This is never going to work.  There are studies that back up the notion that we need to be considered as having separate needs and that recovery must encapsulate care for both our physical and mental conditions.

I have heard accounts from those with diabulimia that are of a normal or even above ‘healthy’ weight that have been put on an anorexic diet. Many have suffered from oedema and have experienced rapid weight gain alongside flair up of complications such as retinopathy and neuropathy. All of this can be hugely distressing not to mention dangerous. 

Other considerations readily overlooked may be the need for extra water, and the entire fact that to become better a type 1 diabetic needs to be MORE hands on with regards to acknowledging food intake, whereas usually someone with an eating disorder is encouraged to step back and become more relaxed, less fixated about what they are eating.

Changes have been made, but the bottom line is that funding is being tossed away when it could be carefully put into specialist care, the right care.  Ignoring this makes a mockery of the fact that we have a national health service, and is an injustice to those people in other parts of the world that do not.

Returning to the words of my psychiatrist, I believe that everyone should have options and be listened to in a discussion regarding their own treatment.  Mental health difficulties can happen to everyone. Having an eating disorder does not mean all our thoughts are automatically scrambled and become irrational, especially where medical knowledge of a condition we have lived with for many years is involved. Often we are the expert more so than the practitioner we are speaking to.  Discussion and sometimes disagreement can be understood (yes, particularly when mental capacity may be compromised), but blatant disregard will automatically casts battle lines.

We are not just patients. We are not just statistics on a chart, a summary of our weight or BMI or HBA1C and we do not need a price tag around our necks.

We are people. We should all be given choice.

By Claire Kearns.

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Keep talking, but don't forget to listen

There’s a belief I want to challenge. One that prompts similarly phrased sayings that are tossed around frequently and readily, in an attempt to disrupt and ultimately lessen the stigma of mental illness.


“You wouldn’t feel ashamed of having cancer, the flu or diabetes!” “Taking antidepressants should be regarded the same guiltless way as a diabetic taking insulin!” “Physical illnesses hold no disgrace!”


Ring a bell? The medication one I hear most often. Taking insulin might be listed alongside treatments such as a cast on a broken leg, painkillers to nurse headaches, a plaster for an accidental wound. Offered as an aid that is seen as easy and without any questioning as to its need. 


I understand the perspective and the intention, but it’s so very inaccurate. 


Am I picking holes? What’s the harm, right? Wrong. It IS damaging. It adds to the mistaken regard of physical illness as entirely separate from psychological. While attempting to normalise conversations about mental illness, a regard for the emotional influence of some ‘physical’ conditions is being thrown under the bus. This is especially important in relation to ED-DMT1 and diabulimia. For those that struggle with an eating disorder and type-1-diabetes taking insulin is not an action that is thoughtlessly undertaken without fear or worry. In fact, it is far from, that fear can feel crippling.


The notion that there is no ignominy attached to physical conditions is a lie. This most related to the misconceptions attached to the presence of what are labelled ‘invisible illnesses’. Many people assume that if an ailment is not in plain sight it must not have any significant impact. This makes it harder to let some aspects of it be seen when they need to be. And honestly, the sheer principle that having a bodily malfunction that can never be fixed (unless there’s a cure) is not going to be mentally burdening is quite ridiculous.


There’s also the commonly held assumption that diabetes being like doing X and taking Y which will equal Z. This can often be based on interactions people have had with those that have type-2-diabetes which is treated by tablets and so rarely the cause of disabling erratic blood sugar levels. I mean, your friend tells you her grandfather is diabetic but it doesn’t let it affect him at all so why should it get you down!


Of course, it’s brilliant that the barriers around mental health stigma are being pushed through. Talking and overcoming our embarrassment over distress and anxiety and depression is a hugely positive thing, but that shouldn’t come at the expense of widening understanding of the link between chronic health conditions and emotional strain.


Moreover, if you don’t have direct experience of something you should always consider your words relating to it with care. Yes, we need to keep talking, but we also need to be listening more intently, with an acknowledgement that teaching is one success, but learning from others is another that is just as important.


By Claire Kearns.

Depression, diabetes and eating disorders

Depression: another big D word and largely silent, invisible illness. Standing alone it can be emotionally devastating and incredibly difficult to cope with. With diabetes involved, depression is often given further means to fester and grow quite dramatically, with stable blood sugar control often overlooked or given less attention than it needs to have. Most recent studies show that depression is twice more commonly found in individuals that have diabetes than those without. It has also been reported that around one in three people with long term chronic conditions experience poor psychological well-being, compared to one in four within the general healthy population.

But why? And how do we address it? Uncontrolled diabetes can be problematic enough to treat, especially with many health practitioners not addressing the emotional roots of the diagnosis at all. A dominating precense of depression can cause the pro-active approach a diabetic needs to take can fall easily by the wayside, with self-care becoming a burden. Of course, such despondency can often be a part of someone experiencing diabetes with an eating disorder as well. Depression, diabetes and an eating disorder make up a dangerous mix whereby each condition can be fuelled by the others, maintaining a cycle that is difficult to break out of.

Despite the high numbers of diabetics that also experience depression, any information available upon diagnosis is sorely lacking. You are typically given all the education that you need in relation to what insulin to take, what to do in cases of hypo or hyperglycaemia and which snacks are better than others, but what about the emotional issues? It seems quite rare that any insight or support is provided to acknowledge what coping with diabetes can do to your head.

Undoubtedly the realisation that type-one-diabetes is an incurable, unrelenting illness which will be with you for life can be difficult to accept at diagnosis. Then there's the possible perceived alienation from peers, the confusing and unanswerable question of 'why me?', the loneliness and isolation of it all. Furthermore, there is the urge to be free and able to do everything your friends can do without having to stop and test your blood/inject/eat every few hours. Such yearning can trigger a sense of denial and rejection of acceptance: what blind-sighted health professionals can term “non-compliance”. It can also be hugely challenging to deal with the influence of mixed media messages that can spread ignorance to the public and the barrage of unhelpful, intrusive comments that may come from the people around you. Nobody seems to tell you about any of this in the beginning.

Of course, this isn't always the case, some people do have good accounts of the process, where the right resources are offered and they feel supported. However, for every success story, there seems to be several other cases whereby a newly diagnosed diabetic is given a few leaflets, a clinic appointment in four months, and is then sent on their way.

Diabetes UK explains the following on their website: “Everyone reacts differently when they hear the news that they have diabetes. You may be initially overwhelmed, shocked, afraid, angry and anxious. Some people go through a stage very similar to mourning – as though they are grieving for lost health. “

Diabetes can also become a tool for self-harm, with suicidal behaviours complicating the issue even further. As well as the highly dangerous practice of omitting or reducing insulin which can be largely associated with an eating disorder, a sufferer of depression may misuse their medication in other harmful ways. This could be by overdose or purposely prolonging a precarious state of hypoglycaemia. Depression can jump on diabetes as a way of pushing the boundaries of life to a desperate and potentially lethal knife edge.

Patience Blystone spoke of how at the height of her illness depression provided her with yet another tool to hurt herself with: “Along with my eating disorder being shown through poor diabetes control, my depression has done the same.... Whether it's me screaming out for help or to be noticed, punishing myself because I feel I deserve that, or just neglect because I can't muster the energy to take care of my body.”

Talking about how she is now able to manage her depression more appropriately through an on-going process of recovery, Patience said: “I've coped with it by finding out what makes me depressed. I am a huge perfectionist, have terrible anxiety and in general am very pessimistic towards my own life. By realizing that setbacks won't ruin my life or make people dislike me, I've managed to always feel the need to be perfect. I can tell myself 'Well if this goes wrong I have THESE alternatives' and move on. My anxiety is a daily battle of tiny bouts of courage, tears, yoga, and just pushing past my comfort zone. And the being negative is just a day by day thing. I find if I enjoy the small things and try not to focus on the hard problems for too long it lessens.

Lucy O'Meara also believes that diabetes has played a role in the development of her depression. She talks of how the condition “majorly decreases (her) motivation which makes relapsing more likely and diabetes control go out the window.” Kayleigh Lovell, who was diagnosed with both type-one-diabetes at the age of six believes her own severe depression started gathering roots at the same age. “I find basic tasks like brushing my teeth or getting dressed almost impossible so taking care of my health is difficult. My eating disorder, OCD and depression have always prevented me from making my health a priority.” she says, “I often feel like I am committing a slow suicide.”

This is not to say that advances in treatment settings are not happening. Recent years have seen the link between psychology and diabetes being considered a lot more has been previously seen. Reports on the association of disordered eating have been a small part of this. Most significantly the National Institute of Clinical Excellence (NICE) released new guidelines which outline the importance of psychological support for children and young people with diabetes. They also updated their existing recommendations concerning this area in relation to adults.

But we need to continue making a noise.  Progress is being made in ripples but we need a crashing wave. If you are reading this and suffering from depression please speak out and don't be afraid.  There is nothing whatsoever to be ashamed of.  Vocalise your distress, shout about it if you must. Go to your GP, diabetic nurse, consultant or even a friend who can advocate on your behalf because you shouldn't have to suffer alone. Nobody should have to suffer alone or in silence. You deserve to be heard.

By Claire Kearns.

How Anxiety Can Feel

If depression is the black dog in the corner then anxiety is the gnawing monster on your back. It will cling to you, drain you of energy and leave you shaking like a steam train on rusty railway tracks.

If you'd told me a few years ago that anxiety would be such a significant problem for me I might not have believed you. Mental health issues have been familiar since my early teens, mostly that looming shadow of catatonic depression, but I'd never really experienced anxiety beyond what is considered the norm. It was only in my mid to late twenties that it started to creep up on me, and now at the age of 28 it is a constant, stalking presence.

There are two types of anxiety. Generalised anxiety disorder can develop as a nauseating terror that sits in your stomach. In can rush over you in waves, suddenly rising, falling and churning around like the inside of a washing machine. It stops you going out and tells you something bad will happen if you do, something awful. In response you squirrel yourself away indoors and avoid interaction with people which ultimately only feeds the original fear.

Acute episodes are those moments where you are pushed right to the edge and suddenly the world around you is distorted. Everything speeds up and you can't reach out or steady yourself. There are usually identifiable catalysts, the small errors that your mind can run with and blow up to extreme proportions.  Perhaps a smashed plate, a late bus, a spilt drink, the anticipation of a particular event or occasion that you are facing. Your head will play tricks; add two and two together to make five, and obsess to an extent where you feel tied in knots.

I am currently in London, dog sitting for a friend while she is on holiday. My aim has been to use the opportunity to meet up with friends who live nearby and be as social as possible while I am here. This is proving to be quite challenging and I am having to draw on various coping mechanisms to get by. Busy train stations and fast moving crowds are very much a trigger for anxiety, as well as the pressure of interaction with others. It is a wearing but worthwhile struggle to stay present instead of avoiding and retreating into a safe but ultimately smothering shell. But I refuse to give up and let anxiety win.

There can be some real strength to be gleaned from the familiar lesson "fake it till you make it". Although putting on a pretence long term is not a solution as recognising your own self worth is important, courage taken in small bursts of role playing can be beneficial. Take on the character of the woman stood next to you waiting on the underground platform. She is smart and has her head held high, she is on the way to work or an important interview or appointment. Transform yourself into her shoes and detach yourself from the mental processes that are holding you back.

 It is also crucial to try to understand that a situation may be less than ideal and bad experiences do happen, but it does not mean the end of the world. Ask yourself ‘what’s the worst that can happen?'  Then keep questioning and pushing, "and so what if it does....what would that mean?' 'So what if I do make a fool out of myself, so what if someone doesn't like me, so what if I get into a disagreement.... so what? Why does it matter?' We all mess up and make mistakes, it is part of being human. You may come up against judgement, discrimination or prejudice, but that has more to do with the instigator than it does about you. Not caring about the insignificant things is far more difficult than it should be, but it is a goal that can be achieved with practice. In turn, be patient with yourself and recognise baby steps that will eventually add up to a mile. It is easy to throw in the towel and label yourself a failure if you do not manage to do something you intend to, but on the days that you just make it as far as the end of the road when the day before you only made it to the front door, that is still a success!

 My own anxiety manifests very much in a deluge of thoughts that run through my head at marathon speed. I am usually able to distinguish irrational from rational but when my anxiety is particularly raging it can be harder to do so. Paranoia sets in and I find myself interrogating myself and harshly assessing my every move, how I look, how I act, the words that come out of my mouth.  Even after walking away from social situations I will pick apart my actions with a fine tooth comb and find imaginary evidence to support flaws and wrongdoing. Regret. Guilt. Self-hatred. I have to step away for a second. I have to try and remind myself that I cannot rely on those thoughts, I cannot trust myself. It is common for me to want to seek a lot of reassurance from other people but I also have to resist this doing too much, as it can create annoyance and unease where there was not even an issue to originally address.

Being able to identify and separate the physical elements of anxiety from the mental is also really important. The racing heart and quickened breathing that may come on either in a fight or flight nervous episode, or as a result of mental distress, is simply the body's reaction to panic. It does not mean that you are in any actual danger.

 Distraction is a key element in addressing anxiety. If available to you, talking therapy can be of great benefit. But individual mindfulness exercises or meditation can also make a real difference and there is an array of Mental Health literature and information available in relation to practicing both. Adult colouring books or games that sharpen your brain into a focus beyond the anxious feelings can also be of great use, as well as knitting, drawing or writing. It is okay and entirely healthy to need time out and space to yourself. Make a list of activities you can read through and try out during those moments when everything starts to feel too much and your mind becomes too distorted to think straight. In doing so your anxiety should gradually begin to lessen until it is at a more stable level.

Most of all remember you are not alone. Mental illness can feel personal and isolating but it is far from uncommon. According to anxietyuk.org More than 1 in 10 people are likely to have a ‘disabling anxiety disorder’ at some stage in their life and an estimated 13% of the adult population will develop a specific form of anxiety known as a phobia at some point. That woman next to you on the tube platform could have just repainted her face after an emotional breakdown among the crowds. Reach out if you feel yourself slipping and let others support you. Good friends will be there to hold you up when you are lagging.

Anxiety might often feel completely overwhelming but it can be controlled and contained. Although it is unlikely to ever be a complete after-thought, it can be put into a box that sits in the background of your thoughts, which slowly through experience and the testing out of different situations will become smaller. Try to enjoy spending time with other people and letting them spend time with you. Those moments can be treasured and put into a new box of positive memories.

By Claire Kearns

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This article was originally written by a DWED contributor in 2016 and then published by www.healthisyourwealthmagazine.co.uk. It is reproduced here by the author for Mental Health Awareness Week.